Join our community

Thank you very much for your interest in collaborating and registering with the Association of patients diagnosed with FMD and SCAD.

Together we will manage to give visibility to the disease, promote research, reduce diagnostic delay, and improve treatments and the quality of life of patients.

Important: To make your registration with the Association effective, it is essential to fill out the form and send the proof of payment of the fee to the email: dfmscad@gmail.com

Follow the steps below and fill out the form to become a member

1) Make a transfer to our account with the following information:

Account holder
- Asociación de Pacientes con Displasia Fibromuscular y Disección Coronaria Espontánea

Bank account IBAN
- ES46 0049 6038 1923 1613 4707

Concept:
- Full Name

Annual fee amount:
- 50€

2) Send an email to dfmscad@gmail.com, attaching the transfer receipt

3) Fill out the following form:

Full Name

Date of birth

Month

Day

Year

Gender

Identity Document (ID)

Phone

Email address

Full address

Country/Region

Address

City

Zip / Postal code

Member type

Privacy and data protection policy

The DFMSCAD ASSOCIATION is responsible for the processing of the interested party's personal data and informs you that this data will be processed in accordance with the provisions of Regulation (EU) 2016/679, of April 27 (GDPR), and Organic Law 3/2018, of December 5 (LOPDGDD), for which you are provided with the following information on the processing:

Purposes and legitimacy of the processing:

Purposes Legitimacy
Provision of information services provided by the DFMSCAD association

Execution of a contract or pre-contract to which the interested party is a party (art. 6.1.b GDPR)

Processing of health-related data, communications of services provided by AEPPEVA
Consent of the Interested Party (art. 6.1.a GDPR)

Data retention criteria: they will be kept for no longer than necessary to maintain the purpose of the processing or there are legal requirements that dictate their custody and when it is no longer necessary for this, they will be deleted with adequate security measures to guarantee the anonymization of the data or the total destruction of the same.

Communication of data: data will not be communicated to third parties, except for legal obligation.

Rights of the Interested Party:

Right to withdraw consent at any time.
Right of access, rectification, portability and deletion of your data and limitation or opposition to its processing.
Right to file a claim with the supervisory authority (www.aepd.es) if you consider that the processing does not comply with current regulations.

Contact details to exercise your rights:

ASOCIACIÓN DFMSCAD

G-24977704

dfmscad@gmail.com

Explicit consent: the Interested Party must authorize the processing of the member's health-related data and the sending of communications regarding products or services, by checking the corresponding box:

I have read and accept the Privacy and data protection policy.

Frequently asked questions

Everything you need to know about how to join and be part of our community.

Who can become a member of the association?

Anyone diagnosed with FMD or SCAD, as well as family members, friends, and healthcare professionals interested in supporting our cause.

What are the benefits of becoming a member?

Exclusive access to support groups, information channels, updated scientific evidence, and active participation in the association.

How do I share my personal story?

You can send us your story through the form in the 'Share your Story' section. Your experience helps provide visibility and hope to other patients.

Is becoming a member free?

We have an annual fee that helps us carry out joint activities, online meetings with other patients and healthcare professionals, seminars with experts, to design and maintain the website, and support networks for all our members.