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Fibromuscular-Dysplasia-and-Spontaneous-Coronary-Artery-Dissection-patient-association-logo
BECOME A MEMBER

Every story is unique and valuable.

 

Every story adds up.

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Your life story may be what someone else needs to read today.

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Many people take years to receive a diagnosis and do not know anyone else with this disease.

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Sharing your experience helps others feel less alone. It does not need to be perfectly written, nor does it need to have a happy ending. It just needs to be yours, honest, and real.

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Thank you for daring to tell it.

Together we are stronger!

Comparte tu historia
SUBMIT MY STORY

Unique stories

Tell us your story. Every story is unique and every story adds value.

There is no right way to do it.

 

You can tell us how the diagnosis went, how you have felt, who has helped you in the process, and what your life is like today.

 

Just your experience, in your own words, honest and real.

Diagnosis

  1. Tell us how the symptoms started 

  2. How long did it take to get diagnosed

  3. What medical tests and treatments were indicated for you

  4. Which doctors and at which hospital treated you

  5. How did you feel when you received the diagnosis...

They can be positive or negative. Such as feelings, people, strengths, moments...

Privacy and data protection policy:

The DFMSCAD ASSOCIATION is responsible for the processing of the interested party's personal data and informs you that this data will be processed in accordance with the provisions of Regulation (EU) 2016/679, of April 27 (GDPR), and Organic Law 3/2018, of December 5 (LOPDGDD), for which the following information on the processing is provided:

Purposes and legitimacy of the processing:

  • Purposes Legitimacy

  • Provision of information services provided by the DFMSCAD association

Execution of a contract or pre-contract to which the interested party is a party (art. 6.1.b GDPR)

  • Processing of health-related data, communications of services provided by AEPPEVA

  • Consent of the Interested Party (art. 6.1.a GDPR)

Data retention criteria: data will be kept for no longer than necessary to maintain the purpose of the processing or as long as there are legal requirements that dictate its custody, and when it is no longer necessary for this, it will be deleted with appropriate security measures to guarantee the anonymization of the data or the total destruction of the same.

Data communication: data will not be communicated to third parties, except for legal obligation.

Rights of the Interested Party:

  • Right to withdraw consent at any time.

  • Right of access, rectification, portability and deletion of your data and limitation or opposition to its processing.

  • Right to file a claim with the supervisory authority (www.aepd.es) if you consider that the processing does not comply with current regulations.

Contact details to exercise your rights:

DFMSCAD ASSOCIATION

G-24977704

dfmscad@gmail.com

Explicit consent: the Interested Party must authorize the processing of data related to the member's health and the sending of communications about products or services, by checking the corresponding box:

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